i still have symptoms, i still have flare ups, pain, seizures & i definitely still struggle. it is never fun having awful episodes or being in pain – but my life has changed SO much since properly adapting & accommodating my needs โค๏ธ

    my wheelchair does not get rid of my conditions, but it does allow me to get outside even during flare ups, giving me some freedom back โ™ฟ๏ธ with adaptations, i can still DO the things i want to despite my health struggles. i can finally get out again and feel โ€œnormalโ€ because i have the tools i need to access the world!

    accessibility changes lives. ๐Ÿ‘๐Ÿป

    don’t forget to subscribe ๐Ÿ™‚ โ™ก

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    โญ๏ธ instagram โ–น https://www.instagram.com/zara.bethx/

    โญ๏ธ join my discord server โ–น https://discord.gg/zarabeth

    โญ๏ธ become a channel member โ–น https://www.youtube.com/@zara_beth/join

    โญ๏ธ stream my music โ–น https://distrokid.com/hyperfollow/zarabeth/shes-mine

    โญ๏ธ all socials โ–น https://portaly.cc/zarabeth

    BUSINESS EMAIL โ–น enquiries@zarabeth.co.uk

    ——————————-
    #chronicillness #mobilityaid #disabled #wheelchairuser #accessibility #accessibilitymatters
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    โœฐ FAQs โœฐ
    1.What conditions do I have?
    โ€ฃ I have Tourette’s Syndrome, FND and dysautonomia along with being autistic and queer! I also advocate for mental health.
    2. What is FND? ๐Ÿง 
    โ€ฃ https://fndhope.org/fnd-guide/
    3. What is Tourette’s?
    โ€ฃ https://www.nhs.uk/conditions/tourettes-syndrome/
    4. What do I use to edit videos? ๐Ÿ–ฅ๏ธ
    โ€ฃ Final Cut Pro X
    5. What filming equipment do I use? ๐Ÿ“ธ
    โ€ฃ main camera* – https://amzn.to/3MW7v8w
    โ€ฃ tripod* – https://amzn.to/3P7G8Ly
    โ€ฃ vlogging camera* – https://amzn.to/42CBQ1G
    โ€ฃ mic* – https://amzn.to/3qD5gjg
    โ€ฃ wireless mics* – https://amzn.to/3X2RxOE

    โญ๏ธ YouTube Setup + Equipment* โ–น https://amzn.to/42QmxCN
    โญ๏ธ Recommended Products* โ–น https://amzn.to/41wXJPX

    (*af links mean i make a small cut from any purchases, but this doesn’t cost or affect you! ๐Ÿ’•)

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    โœฐ About Me โœฐ
    My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and living with Tourette’s Syndrome, Functional Neurological Disorder (FND) and Dysautonomia. Tourette’s syndrome is a neurological condition causing involuntary movements called tics.
    I use my social media (TikTok, YouTube & Instagram) to advocate and raise awareness for my conditions and share what it’s like living as a neurodivergent and disabled person. I am autistic, sharing my sensory struggles along with my experiences with mental health disorders.
    I share the accommodations I use to help my daily life, and I’m an ambulatory wheelchair user documenting my life using mobility aids and how chronic illness symptoms vary from day to day!
    I’m a musician with a song called “She’s Mine” available on all streaming platforms, and I’m an artist with a small business and website selling my artwork, disability merch. I also love reading, writing, and I’m currently writing a novel and a book/memoir about my life!

    41 Comments

    1. ive been looking at power aids (no idea what to actually call them) that fit on the wheels but seeing this i'm wondering if i might like this type. one thing i do know is whatever type i choose my wallet wont like it.

    2. So proud of you Zara. I'm just under 2 years older than you and you have taught me so much. Due to my mental health I have mobility issues and have to pace myself (I'm still learning how too๐Ÿ˜‚) thank you for this. Also I'm not diagnosed as neurodivergent but have similarities to some so you're content helps. Sending joy and love. Proud of you ๐Ÿ’™๐Ÿณ๏ธโ€โšง๏ธ๐Ÿณ๏ธโ€๐ŸŒˆ๐Ÿ’™

    3. I hope that can happen for me. I'm struggling with an energy limiting disability, and I think mobility aids would be helpful, but it's hard to get my voice heard, and hopefully I'll get the help I need soon. I'm so happy you were able to get the stuff you need, your wheelchair looks very cool

    4. You inspire me to enjoy life more and use my mobility aids to help me enjoy life more. Iโ€™m so glad youโ€™re able to enjoy life and have so much freedom with your mobility aids to help you enjoy life to the fullest. Keep being you.

    5. Love this and itโ€™s so good when you finally accept yourself how helpful your tools and adaptions can be I really struggled with using them only last week I finally gave in to using the hoist at the swimming pool

    6. Thank you for spreading the awareness and positivity you do! So glad that youโ€™ve been able to get back into the world and have so much fun! Your commitment to being yourself is admirable. ๐Ÿ™‚

    7. I hope to see the day that I reach that point too, where I'm living instead of just surviving and struggling as the medical system continues to gaslight me. Never forget that you're an inspiration for so many people Zara!

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