This year has been a major roller coaster for us behind the scenes, & today we’re finally ready to fill you in on everything that’s been going on. This video is the long story of my recent epilepsy diagnosis. Thank you for being here 🙏 Go to our sponsor https://betterhelp.com/kandn to get a special discount off your first month of therapy with BetterHelp & get matched with a therapist who will listen and help ❤️
Episode 929 | Filmed June 2024
https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-onset-aware-seizures
0:00 I have epilepsy
1:06 Goals for this video
2:59 My Epilepsy Journey
6:04 the day everything changed
10:03 first doctor’s appt
13:14 back to 2018 problems
16:48 my memory issues
19:16 I love you
20:58 Neurologist Diagnosis
23:43 EEG and MRI tests
27:25 test results
29:48 my treatment plan
32:52 our future plans
43 Comments
Ive always thought excessive travelling was harmful to your health long term
@karaandnate: Both of you have had health scares and issues. You are so brave for talking about them, coming forth with vulnerability and humanity. You are breaking the culture of SoMe inauthenticity and fakeness. I wish to sincerely thank you for that and I wish you all the best ! You are legends with huge courage and heart! 🥹💖👏❗️
❤❤❤❤🇧🇻🇧🇻🇧🇻
Prayers for your healing Kate
In 2008 I started getting sick. It took years to figured out what was wrong with me. Half the time I felt like I was going crazy. Knowing that you’re not crazy and other people actually have symptoms like you is more reassuring that you’re not alone, though I might not have the same illnesses as you, but I understand. Nate I know it’s hard to see your spouse or a loved one go through something like this, but I’m glad she has you and a strong family behind her to support her which includes all of us we love you guys and praying for you always.
I have this as well and its not a dead sentence. Also my son has it. Now I mentor other people. Willing to talk to you about any additional questions that you might have.
I was diagnosed with brain cancer 6 months after we got married. I have been on seizure meds for 11 years now. Having my husband go through that with me was the hardest thing I’ve ever been through. Prayers for you both
Just found your channel and wow my heart really goes out to you both. I have seen seizures from family members and it’s beyond terrifying and a lot to process. I’m so sorry you’re going through this. Our son (3 y/o) was diagnosed with epilepsy over a year ago and we’ve gotten into our own groove. Not sure what type of epilepsy you have, but if you haven’t already, it may be worth looking into a medical keto diet. This has been an absolute game changer for our son with the help of a wonderful nutritionist who specializes in medical keto. It was something we never knew about. That said, I hope you feel the love and support from those around you. You are stronger than you think, you got this!
I am so sorry to hear about this Kara. Prayers to you and Nate. <3 I love your optimism, honestly I was diagnosed with Pancreatic Cancer this year, and had a severe brain stem stroke in 2001, I understand making excuses for everything that happens like I am losing weight because I am more active. I am tired because of this…I get it. Please now that you know, listen to your body. I am now a big advocate of this. Love you both!!
May God be with you Jesus loves you with a love not a language can explain
Sending positive vibes! I’m going through this with my daughter (she’s 10) and it’s a lot, takes forever to navigate the appointments and get answers. It’s helpful to hear others experience so thank you❤
You're positivity and grace is inspiring ❤
These people genuinely love each other it’s nice to see
My niece has epilepsy due to PMG. It never stops her from smiling though! You got this 🩷
This is SO relatable in so many ways. I myself had 2 seizures in 2021 and then went until 2023 seizure free. When they came back in Oct 2023 and I was diagnosed I thought it was the end of my world as i knew it. I had just graduated RN school and started my first nursing job and then I had an episode that resulted in a skull fracture, Bell's palsy, and nerve issues to this day. Just this year I have had 5 seizures & they are all very sporadic in occurence. I'm still getting my medications right and can't work or drive, but I have faith and you and I will come out stronger:)
And Nate, there is nothing overdramatic about how you feel. My family feels the exact same way. Having to sit there and watch your loved one have a seizure and turn blue from not breathing and you can't to anything about it is something no one should have to go through. You did a great job I can tell.
I have watched you guys for years and lived my travel dreams through you guys. Now I feel like I have someone I know going through the same journey with me. Sending many prayers and good vibes your way!:)
I got diagnosed with epilepsy 3 years ago it’s nothing to worry about ❤🎉🎉🎉
You too are such magnificent humans. Your kindness, modesty and genuineness shine. Sending you virtual hugs and best wishes.
Slow down guys! Enjoy your lives. You've built an empire with a great group of people around you. You don't need to stress yourselves about the next big Kara and Nate adventure. Take life as it comes. Film when you want. Travel slower. Travel for a month and then have a place you can come back and relax to call home. Setup for a marathon not the sprint. I will pray everything works out for you guys, and thank you for sharing your story. I've battled anxiety and depression in my earlier years, and you don't realize the impact your story has on others until you share it. If you can help one person, it makes all the difference!
Hi there!
2 years ago I got diagnosed with epilepsy at 17 years old. It has been so crazy and it has taken so long to finally get my life back on track. I don't see videos/people talking openly about epilepsy openly, so I am so thankful I found this video. Sending so much love to you guys
my son has epilepsy and people don't realize how scary and hard it is to deal with. Thanks for talking about it – it helps others realize they are not alone.
myb its diffrent in the US but if someone has a seizure call an Ambulance
I think you guys should get a service dog and once you learn to live differently (because there is nothing wrong with you ❤) you can get back to traveling like you love 😊
Another boohoo story "look at me" from more narcissists YouTubers
OH MY! I LOVE YOU BOTH FROM BANGLADESH .. I MUST PRAY FOR YOU KARA TO CURE SOON FROM EPILEPSY . I BELIEVE YOU WILL CURE SOON FROM THIS .
😍
Hi Nate & Kara
Thanks for the update video.My daughter also has epilepsy and has been on medications for almost a year now. The very first seizures she had were scary i didn't know what to do to help her..I cried a lot.We later got to see a doctor and she had her EEG which confirmed she has epilepsy helped a lot. It will get better with time ❤
Guys you should consider a therapy dog….maybe down the line,and get that medical alert bracelet!
First time having covid, she says in the same breath of not taking a test when symptomatic. Covid is nothing to mess around with. How many people did you hurt spreading it to?
I have Epilepsy and have since I was 7 I am currently 15 and can say that it is such a long process but in my case it was more horrifying for my parents than me. but I know that you can get through it. I am finally getting comfortable and in about a year I am hopeful that I will be able to get off of my medication. You got this !!❤
Oh the relief + uncertainty you guys must have/are feeling! Praying God continues to look after you both. Xx
I was hit by a car & suffered a significant TBI when I was 34 (I'm 52 now). Shortly after I started having grand mal seizures. I was diagnosed with epilepsy & later on traumatic Parkinson's disease. It was terrifying initially (I was a single mom). But I promise you, with the right Drs & medications & just taking care of your physical & mental health (which you seem to do), life can regulate & be fairly normal. The absence seizures (dizzy spells?) you do learn to live with. Routines help.
My mom used to have it prior to getting diagnosed with kidney failure. It is very scary for the family members initially because we want to care for our family and feel we aren't doing enough. That feeling of helplessness was too much to bear sometimes. I too have a brain tumour managed with medication so i can relate to the feeling. Sometimes it feels as if you're trapped in a body which isn't healing the way you want it to. But I'll keep you in my prayers. Hope you too are able to live a wonderful and uneventful life and this is managed well. Lots of love to both of you.
you got off easy appointment wise. I have a brain tumor so i get periodic brain scans. I had really bad test results in Jan that said i was 80 % likely to die a horrible death from aggressive dementia. Im asymptomatic right now. I came close to having a real mental breakdown and im still fragile. Its now july 17, 2024. I STILL do not even have an appointment with a Neurologist even though i go to one of the biggest hospitals in Ca for my care. I am scared out of my mind, for real and i cant get an appointment at all. maybe I should move to Colorado.3 months isnt long in this crazed day and age. im sorry you are going through this journey.
You are two of the strongest people I have come across. Kara you can do this!!!
Hi Kara I have epilepsy myself it’s not easy but with the right program an meds u will do really well
Kara.., smile..! You will be fine. I was diagnosed with epilepsy many years ago…, like 1969. I've survived. Have those years been without incident? No. But I've survived.., I've gotten past those incidents.., I'm now 74 and looking forward to years yet to come without issues. Take your meds as prescribed. Visit your doctor as they summon you. Stay away from things that your doctors tell you to. Live well and happy.., and you will be just fine. Note: given the life you've lead over the past few years.., accept that you may have to give some things up. Just change directions, and continue to smile.
I have been watching your videos for the last year. Kara you and Nate are great together. The 36 day bike ride through the Colorado mountains video was my favorite and it showed what a wonderful person and caring wife you are. I never post on your channel because with so many views and comments you may never see mine, but that's ok. This posting is to let you know my prayers are with you. ❤🙏
Kara and Nate. It is so good to see you. Happy Anniversary!
Ive been in and out of the hospital my entire life. I live in north Georgia, our hospital is north Georgia medical center. Unfortunately ive had to go there alot, terrifies me each time since you usually come out worse then you went in. Then i turned 35 and had a heart attack that lasted 2 days and 1 night, went to the emergency room and they took a person who was badly sun burned on their foot before me. I eventually collapsed in the waiting room. Long story short i finally got out weeks later. Plz plz dont take any trips to north Georgia if you have health issues. I had two nurses tell me they wouldnt bring their dog to that hospital, but they have to work there until they graduate something. So glad ur doing better. Love you guys so much!!
So my epilepsy which probably does not correlate with yours, but I will tell my experience if it can help…. I went on a keto diet and it helped about 60 or 70 percent. Then I started taking gaba and melatonin to sleep and that helped about 10 or 15 % more.. I have only had two episodes in 5 years.
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Kara,
My best friend of twelve years was diagnosed with epilepsy when we were 15. Her seizures were also triggered by sleep deprivation. She's been seizure free for six years and has actually gotten off some of her medication recently. Now, she's a pediatric neurology nurse and works at the hospital where she was treated at as a teenager. She uses her epilepsy as a tool to connect with other people and is a huge spokesperson for childhood epilepsy, which truly shows how we are born with a purpose. It would be so incredible if could use your platform to speak on behalf of the epilepsy community and show how, despite this health challenge, how you don't allow it to limit you and your travels! My best friend and I have traveled across the globe multiple times, is getting ready to start a family, and better yet, she's happy and healthy. We just have to make sure she gets eight hours of sleep each night, easy peasy! I know this is scary, but you can absolutely manage this — this is just a new obstacle for you, that we are ALL sure you can overcome. Thank you so much for sharing with us, sending you and Nate lots of love!
Hi Kara. Thanks for posting and being authentic. I have both epileptic and non-epileptic seizures. I take medicine for my epileptic seizures and I have to regulate my stress for my non-epileptic seizures. It’ll be some thing that you’ll have to play with in terms of your medication and your way of living. But y’all can do it. You’re very much in tune to each other and it’s a good thing you have Nate on your side. Prayers that this medicine is working for you and you’ll be able to find a balance between your work and your health.